» On 11/01/2026 12:10:00 AM Mountain Standard Time, Alan wrote:
RemeMG. 

The Boston-based Upstream MG clinical trial gave me an insulated backpack last Tuesday. It's a hand-me-down leftover from RemeMG, the China-based Myasthenia Gravis trial sponsored by RemeGen Co. (荣昌生物) that concluded earlier. They also provided a phone that runs only one app... 😉

The backpack is designed to carry my personal supply of Telitacicept (marketed in China for FIVE autoimmune disorders) and it's insulated because this medicine requires refrigeration. So when I go on a trip, I need to put ice packs in the knapsack with the box(es) containing loaded hypodermic needles.

Every week, on the same day, I shoot myself up with two syringes. Shoulders, thighs, or stomach, in rotation. Two different injection sites, with at least two inches separating them. A sticky narrow booklet is wrapped around each injector, with instructions for 23 countries in 12 different languages: Czech, Dutch, French, Georgian, German, Italian, Japanese, Norwegian, Polish, Portuguese, Swedish, and... what's that other one? Oh yeah, English. 😉

See the springs? When I finish pushing the plunger, they pop the needle out of my body. Easy Sqweezy, Super Cheesy! And after shooting up, I'm supposed to put the used needles in this handy-dandy sharps disposal container.

"Put Yer Money Where Yer Mouth Is" Dept: Vor Biopharma is the sponsor of this clinical trial, and the medicine is working extraordinarily well for me. When Vor announces the trial results next year, I suspect their stock price will skyrocket. So, as of last Thursday, I became the proud owner of several shares. Symbolic investment in my future. 💵💰🪎😉

Tue03Nov2026 UPDATE: The phone alarm was scheduled to go off at 8am this morning, to remind me about my injections. And I was supposed to log my data into the app: (1) the time the Telitacicept was taken out of the refrigerator, (2) the box number of the injectors, (3) the times and locations of the injections, (4) any adverse reactions. But the app gave me nada, nothing, bupkes. The developers told me I screwed up, when I opened their app two days ago, to make sure everything was operating correctly. They also said it was impossible to reset their app. However, their alarm finally went off several hours later, at 5:57pm, while the phone was showing 6:57pm. I tried to see what time zone was selected, but was locked out. And their annoying alarm wouldn't STFU, so I turned off the phone's power.

This is a truly *impressive* piece of logging software. 😉

Labels: mg